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SC comes to rescue of infant suffering from rare disease

IndiaTimes Thursday, 19 December 2024
An 11-month-old baby with spinal muscular atrophy (SMA) needs a Rs 14.2 crore life-saving gene therapy. The Supreme Court urged the government to provide immediate financial aid, citing a 2022 notification promising assistance for rare diseases. The child's Air Force corporal father cannot afford the treatment, and the mother argued that crowdfunding within the defense sector isn't readily feasible.
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